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Hypophosphatasia

Emma's Hypophosphatasia
My daughter has a genetic disorder called Hypophosphatasia. I am part of a HPP community and we are trying to get the word out...
 
Uploaded: November 30, 1999 at 12:00 am
Author: jsperberg79
 
Length: 02:33
Rating: 5.00
Views: 207
 
Tags: Hypophosphatasia  
 
Kaitlyn's Journey
Kaitlyn has Hypophosphatasia (soft bones) and a non-specific connective tissue disorder that lies somewhere between Ehlers-Danlos Syndrome (loose joints and "sensitive" skin) and Osteogenesis Imperfecta...
 
Uploaded: November 30, 1999 at 12:00 am
Author: nefkbbcb
 
Length: 09:44
Rating: 5.00
Views: 6006
 
Tags: Alteration  Baby  Chiari  Collagen  Craniosynostosis  Disorders  Ehlers-Danlos  Genetic  Hypophosphatasia  Imperfecta  Kaitlyn  Leukomalacia  Malformation  OneTrueMedia  Osteogenesis  Periventricular  Syndrome  
 
Frankie's Story
Frankie was born 8 weeks premature, weighing 3lbs 12ozs. She was diagnosed with Bronchopulmonary Dysphasia, Apnea, Bradycardia, Patent Ductus Arteriosus, Atrial Septal Defect, and Gastroesophageal...
 
Uploaded: November 30, 1999 at 12:00 am
Author: nefkbbcb
 
Length: 03:40
Rating: 5.00
Views: 1758
 
Tags: Apnea  ASD  Baby  Be  Billy  BPD  Bradycardia  Chronic  Dean  Disease  GERD  Hypophosphatasia  Let  Little  Lung  PDA  Premature  Them  
 


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